Thursday, May 31, 2012

A String of Mostly Good Days

Thursday, May 31, 2012 10:00pm
Our little one has continued on the same path for several days now. Morgan is still on the nasal cannula and seems to be very happy! She is recovering and gaining her energy back. She has been doing more activities, as she will tolerate it. Or, as she wants. For someone who does not have a voice yet, she sure knows how to get what she wants!

Morgan has had a few more tantrum episodes. In truth, it is more of a bronchial spasm. The doctors seem to think could be side effect of a medication. As a result, they have changed to a different medicine. We are hopeful that the spams will end with such a simple change.

We have good news to report about Morgan's glucose levels. Over the past few weeks, they have slowly weaned Morgan's steroids. The steroids are weaned weekly and she has few more weeks to go before she is off of them completely. However, we have been able to see positive results of the wean in her glucose levels. As we mentioned earlier, the steroids were causing her sugars to be out of balance. Each time a steroid wean happens, Morgan body has required less and less insulin. As a result, today, the insulin pump has been turned off! Yay! Praise the Good Lord! The nurses will continue to check her glucose levels to make sure she is able to maintain it in the appropriate range. If needed, they will give her an insulin shot to help her get her sugars back into the normal range.

It has been good to hold and love on her again! The team at the hospital wants us to hold her, love on her, and interact with her as much as possible. It is extremely good for her development, healing and growth. Naturally, it is so healing for our hearts and souls, as well!

Please continue to keep Morgan and her caregivers in your prayers! Thank you for all your love and support! 
We are able to press forward each day holding unto hope and trusting in the Good Lord. That is what sustains us. That is how we can get up each day. That is how we can smile and find joy, despite the long, exhausting road we are travelling. Thank you for the words of encouragement and prayers that you give our family!

Elizabeth and Seth McCoin

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