Monday, May 7, 2012 10:00 PM
Morgan is really settling in and acting like she wants to make strides toward coming home. She is doing so well, with only small fluctuations in her oxygen dependency, but these are only due to her general fussiness of not being able to get what she wants, nor having the ability to tell us to make it happen! Who isn't like that, right? While she still has barriers to overcome, our little chunkmeister is staying the course and enduring her battle. Her overall report from the doctor today was that he is pleased with her progress. We look forward to continuing to receive reports of this nature.
Today, her essential steroids were weened. Her current level puts her approximately three weeks away from being steroid-free. Of course, this timeline is following the expectations of "normal" results, but we are dealing with an extraordinary child in terms of medical standing and overall cuteness. One of my friends' mother's told them that, "normal is only a setting on the washing machine." I can't help but to look in Precious Morgan's eyes and chuckle while remembering that tidbit of wisdom. While we certainly hope that this happens expeditiously, we have been humbled enough to temper our enthusiasm and simply pray that she responds well to the weening.
In relation to Morgan's steroids, Newton's laws of motion ring true, stating that "to every action, there is always an equal and opposite reaction." As we have mentioned, Morgan's glucose levels have been bouncing like the rubber balls that we used to get at the dentists' office. This is the direct result of her dependency on steroids. As she receives her steroid treatments, her glucose shoots to the sky, while skydiving as she settles down. Therefore, this relationship will certainly be improved with her lessened requirement for steroids. Obviously, this is more motivation to push Morgan's body to live without them.
One indicator that things are going in the right direction is that Morgan has become a World Champion Snoozer. She has proven that she can sleep in any circumstance. The hope is that her steadfast ability to sleep is a sign that she is healing and growing. I promise, if we could lobby to get "Sleeping" included as an Olympic sport, the US has found its gold medal from the games in London later this year. I will add that she looks absolutely darling as she sleeps and doesn't mind if you kiss her forehead, chubby cheeks or her little button nose while she slumbers.
Finally, our little butterball got a bath tonight. Of course, the decision to bathe her came while she was sleeping, so the surprise of the her touche hitting the water woke her up to a serenade of "Rubber Ducky." (of course made famous by Ernie from Sesame Street.) With rubber ducks, inter tubes and other bath toys floating around, we got into every crevice and under every roll to make her squeaky clean. We dried her off, placed her back in her crib, turned on her DVD and Snooze-A-Palooza '12 picked up right where it left off.
Of course, I cannot post without expressing our gratitude and appreciation for all of those that take care our sweet girl and for all of you for loving her and praying so diligently.
Seth and Elizabeth McCoin
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