Tuesday, June 4, 2013

Sweet Morgan

Well, I said I would make another post, "in time."  It's time.  This will be my final post but I would be wrong to not mention, and thank, the wonderful people that have surrounded us for the past year.  Morgan passed away 365 days ago, but she has been a part of our lives during each of them, as has Houston.  Rather than ramble about how wonderful they, each, were, I have decided to show you all the Morgan that you may not have been able to see.  I hope the pictures and the music can make sense and tell enough of this story...

Thank you all,

Seth & Elizabeth McCoin

Tuesday, June 5, 2012

Our Angel Morgan

Wednesday, June 6, 2012  1:25 AM

As many of you may have already heard, Our Miracle Morgan went to rest today.  It was sudden.  There is little left to say about the afternoon, other than she went quickly and peacefully.  As I held our wonderful cherub, she just seemed, finally, at peace.  As I have little to no energy left in me, I will call it a night.  I have plenty left to say in regard to this experience.  I will provide an update, in time.

Seth & Elizabeth McCoin

Sunday, June 3, 2012

Attention Hog

Sunday, June 3, 2012 2:30pm

Morgan has had an up and down weekend. On Friday, she was put back on C-PAP because she began to labor to breathe and she couldn't keep her levels up. She responded well to C-PAP and her lungs were able to rest and recover.

Saturday was spent resting. They were able to wean her C-PAP settings and Morgan tolerated it well.

Today, the doctor put Morgan back on the high flow nasal cannula! Good news! As I write this, I am sitting in her room. She has tolerated the switch very well. She is currently watching her Praise Baby DVD and fighting sleep. She has a plastic ring in each hand and a pacifier in her mouth. Morgan seems to be very content and happy. We are going to take a nap together in a little bit!

One nurse has declared Morgan an attention hog. She wants everyone to visit her and interact with her. She does not like it when the nurses have to go take care of other babies. Morgan will find a way to get them to run to her side! She is so spoiled.

Please continue to keep Morgan in your prayers. We asked for continued for her little body and her lungs. We pray for her body systems to learn to work as medicines are weaned. We pray for overall healing.

Our little attention hog is going to have to learn to share the spot light. She has been asked to be the flower girl in Aunt Augusta's wedding! She is so excited!!

Love, Elizabeth and Seth McCoin

Thursday, May 31, 2012

A String of Mostly Good Days

Thursday, May 31, 2012 10:00pm
Our little one has continued on the same path for several days now. Morgan is still on the nasal cannula and seems to be very happy! She is recovering and gaining her energy back. She has been doing more activities, as she will tolerate it. Or, as she wants. For someone who does not have a voice yet, she sure knows how to get what she wants!

Morgan has had a few more tantrum episodes. In truth, it is more of a bronchial spasm. The doctors seem to think could be side effect of a medication. As a result, they have changed to a different medicine. We are hopeful that the spams will end with such a simple change.

We have good news to report about Morgan's glucose levels. Over the past few weeks, they have slowly weaned Morgan's steroids. The steroids are weaned weekly and she has few more weeks to go before she is off of them completely. However, we have been able to see positive results of the wean in her glucose levels. As we mentioned earlier, the steroids were causing her sugars to be out of balance. Each time a steroid wean happens, Morgan body has required less and less insulin. As a result, today, the insulin pump has been turned off! Yay! Praise the Good Lord! The nurses will continue to check her glucose levels to make sure she is able to maintain it in the appropriate range. If needed, they will give her an insulin shot to help her get her sugars back into the normal range.

It has been good to hold and love on her again! The team at the hospital wants us to hold her, love on her, and interact with her as much as possible. It is extremely good for her development, healing and growth. Naturally, it is so healing for our hearts and souls, as well!

Please continue to keep Morgan and her caregivers in your prayers! Thank you for all your love and support! 
We are able to press forward each day holding unto hope and trusting in the Good Lord. That is what sustains us. That is how we can get up each day. That is how we can smile and find joy, despite the long, exhausting road we are travelling. Thank you for the words of encouragement and prayers that you give our family!

Elizabeth and Seth McCoin

Tuesday, May 29, 2012

Temper Tantrum and Swim Practice

Tuesday, May 29, 2012  10:00pm

Today, Morgan continues to be on the nasal cannula.  When she is calm, she is a very happy and content little girl.  She plays, sits up in her bumbo seat, and watches her movies.  She is very active.  Our prayer is for calmness and rest.  When she is relaxed her little lungs can heal and grow. 

That said, we pray against any temper tantrums!  She had one today that lasted for two hours.  When she gets upset, she labors to breathe and it often takes a while to recover.  Imagine yourself when you come up for air after being under water too long.  That is what it is like for Morgan when she labors to get a deep breath. 

Our future gold medalist is already practicing her breast stroke kicks! Up, out, kick, up, out, kick!  When she was upset today, her little legs were practicing her moves. 

We thank you for your continued prayers for her lungs and healing! She is such a cutie pie and a pistol! We love her so much and just want her to get better rapidly!

Elizabeth and Seth McCoin

Monday, May 28, 2012

Short & Sweet

Monday, May 28, 2012  10:50 PM

Precious Morgan has strung together a few great days in a row.  She moved off of the CPAP and back onto the nasal cannula yesterday.  To be honest, it's nice to see her sweet face again, with minimal obstruction.  She is doing very well and we are so excited that she is moving in the right direction.  She seems comfortable, attentive and cute as ever. 

There is not much to report, so this update is very brief.  I like these kinds of updates...

Thank you all for your prayers.

Seth & Elizabeth McCoin

Thursday, May 24, 2012

Sleep, What is Sleep?

Thursday, May 24, 2012  10:00pm
Miss Morgan has behaved for the last two days, mostly.  She continues to be on the C-PAP and tolerating it well.  The settings are very low, in fact, low enough to take her off of it. However, the doctor wants to take it slow and give her a day or so more of rest.  We are thankful for his caution and know that is probably best. 

We all know that Morgan is not a text book case and doing everything the way she wants!  She often plays opposite day.  Morgan keeps her doctor and nurses on their toes!  Start praying for us and her teenage years, now.....

Morgan has not slept in 36 hours or so.  She has cat-napped, but she has not gotten into a deep, restful sleep.  For the most part, she is content.  This afternoon she was a little more fussy, but who wouldn't be after no sleep?  We are hoping for a restful and peaceful night full of much sleep.  She needs to quit fighting it and really sleep. 

Despite being tired, she has not lost her spunk.  She proceeded to pull out her feeding tube today with her hand.  Then, she worked it out a second time with her tongue.  Of course, that meant two additional outfit changes today.  As her nurse said, that is Morgan and if she was not acting this way, then she would be worried!  That little girl!

As she has adjusted this week to the C-PAP, the team continues to monitor her closely and adjust her medicines as necessary.  We ask for prayer for her little body.  We pray that it continues to learn to function properly as medicines are weaned.  We pray for her lungs and all other organs.  We pray for overall healing.  We pray against inflammations and infections! 

While she is on the C-PAP we cannot hold her.  Since Mother's Day, neither of us has gotten our snuggle time with her.  We are itching for her to get back to the nasal cannula so we can hold her in our arms.  We look forward to rocking her, taking her for walks and giving her a bath. 

We thank you for your many prayers for our little girl!  It is humbling how many people care our family, who genuinely love us.  Thank you for all your love and support.

Elizabeth and Seth McCoin