Another C-PAP Day

Tuesday, May 15, 2012 11:30pm


Morgan continues to be on the C-PAP. She will likely continue to have this assistance through tomorrow. If her little body rests and tolerates everything she will get to come of it then. If not, she will earn herself more time on the C-PAP. Her doctor spoke with several other specialists about her care and believes they are on a proper course for her.   Please continue to pray for her lung healing and growth.

This may help describe Morgan's condition. The doctor made the analogy of a person with arthritis. This person can go days and weeks feeling normal and having no pain or flare ups. Then, unexpectedly, their arthritis flares up, causing pain and setbacks from their normal routine. In Morgan's case, the arthritis is her lung condition. Most days she will plug along normally, however, there will be those days when it flares up, causing issues. It will calm down, but we have to help her weather the storm. 
Today has been very emotional.  It is so very hard to see Morgan in what appears to be a cyclical pattern.  I wish there was some magic drug or treatment to help her over this hump.  In my mind, I can accept that she needs time to heal and that these hiccups are just apart of her lung condition.  However, it is just plain hard.  Honestly, sometimes it feels like an out of body experience.  I can go through the motions, but sometimes do not even realize what I  have said or done.  There is little rest or down time.  Both us of work full time and also find time after work to spend at the hospital with Morgan.  Often our day does not stop until our head hits the pillow around 11pm.  My mind is tired, my body is worn and emotions are everywhere.  It is taxing. We are exhausted. 

We are ready for Morgan to be in our home with us!  We are ready to love her all day and help her progress.  We are ready to say "Adios" to the hospital, with, of course, the condition that our friends come to visit us on Montevallo Road. We are ready for our new routine and normal. 

I fully believe our Lord has Morgan in His healing care. I fully believe He is giving us the strength to continue to put one foot in front of the other.  I know He has not given us more than we can handle.  I believe. 

Today, we have several very good conversations with Morgan's doctors.  We are grateful for physicaians who are willing to spend time with us.  Who seek us out to check on us.  Who patiently answer our million questions.  Who encourage us.  Who listen our concerns and fears.  Who love our daughter.  Who go to great lengths to seek the best treatments for our Morgan. Who genuniely care.  We could not be more thankful! 

We also have wonderful nurses who love Morgan as if she were their daughter.  They give her unconditional love. They give her superb care.  They play with her.  They research and try to help find helaing treatments Morgan.  They answer our questions.   They are investing in our lives.  They have become dear friends. They are amazing!  We could not be more thankful for each one of them. 

We thank you each one of you, our family and friends, for the love you have extended to us.  We are thankful for your prayers and constant support.

Love,
Elizabeth and Seth McCoin