A Wink and A Smile

Sunday, September 25, 2011 9:41pm

Morgan continues to hold steady this weekend. While we are thankful she is not declining, we still need her to move forward. We are thankful for each hour and day as she continues to grow and strengthen.

Morgan's lungs continue to be the most critical to her development. Her lungs are very, very sick and need to mature. Babies are remarkable (and it is a God-thing) in that they can re-grow new lung tissue to take over the old tissue. As we learned today, Morgan's lungs need to grow this new tissue in order for her to be weened from the various stages of ventilators. Daddy, are you ready to give up another $20? This is our biggest prayer request, today!

The doctor seems to think the medicine is working to heal her heart. Tomorrow an echocardiogram will be performed to confirm this. We are hopeful that the signs are true and she is healing.

Her feedings were stopped when the heart medicine was administered. Prior to the suspension, she was tolerating the feedings well. We are hopeful that when the feedings begin again, that she will pick right back up. Currently, all nutrition is being administered through her i.v.s. Today she weighed 1 pound 14 ounces. Yea! We pray that she will continue to tolerate the feedings so she can continue to grow and strengthen. The more she rests, the more she she will grow and her fat will develop for her stength.

As of this morning, there were no signs of infections on the various cultures. Please continue to pray that no infections will appear.

The doctor does not seem worried about her brain. It continues to feel normal to him. Another brain ultrasound will be performed on Tuesday. We pray that nothing will appear on it. As noted in prior posts, the brain is the one organ that cannot be repaired if something happens to it. We pray for its protection.

Our prayer requests 1) *** Please pray for her lungs to grow new tissue and mature! *** 2) her heart continues to heal and will not require surgery 3) her nutrition, including growth and strength 4) for the protection of her brain 5) against infections. Please continue to keep the doctors, nurses and all who provide care for our Morgan in your prayers. Pray that they will have the wisdom to treat her as she needs.

We continue to relish in the time we get to spend with Morgan. She continues to grow. She is a lanky little girl. Yesterday, when I went to visit, she opened one eye and waved her hand as if to say, "What's up?" While we are not able to pick her up or hold her, we are allowed to be more involved in her care. We are able to put lotion on her skin and help with her care when appropriate. We are thankful for little moments like these. We are also beginning to notice certain traits she has from both of our families...it is fun!

Seth and I are very thankful for all the prayers and support from dear friends and family. We could not survive this journey without you. Thank you from the bottom of our hearts! Truly, thank you!

Love,
Elizabeth and Seth