Tuesday, April 3, 2012

Up Early and Ready to Play

Tuesday, April 03, 2012  8:35pm

Morgan's day has been very active.  After sleeping all night, she woke at 6:15am this morning ready to play!  She has been playful and awake most of the day!  While she has taken a few short naps, she is much more interested in what is going on around her. 

Since Saturday, rice cereal has been added to Morgan’s formula.  Over the past few weeks, Morgan was spitting up some of her formula. The thicker formula helps with reflux, aspirations and digestion.  She seems to feel better and the rice cereal is helping!  She has only had one clothes-change-worthy spit up since Saturday. 

Today was a big wean day for Morgan!  Her oxygen dependency was reduced!  As has been the weekly plan, the doctor reduced her liter flow.  So far she seems to be tolerating it!  We pray it will continue!!

Also, the doctor is going to talk to the speech therapist about beginning to prepare Morgan for bottle feeding again.   I am not sure the plan, but I am excited at the possibility of her bottle feeding!  If she can get this under control, it will be a big step towards coming home!  We are prayerful that she will collect herself and remember how to suck and swallow.   We know that if this process moves too quickly, or if she aspirates, then there is great risk it will affect her breathing and oxygen dependency.   We pray that these things will not happen.  It is likely the team will do another swallow study, as she begins this process again, to see how maturity, age, and development have helped her swallowing and to see if she is aspirating.   We will keep you posted on this.  Please pray in advance that she will do well while eating from the bottle and that she will not have respiratory setbacks. 

The doctor is going to look into getting Morgan a hearing test.  While we believe she can hear us, it will be nice to know if there are or are not any issues.  I was glad to hear that this would happen.  To me, checking her hearing is another one of her senses that we can test and know what the exact status may be.  Again, I will keep you posted.  I have no idea when this test will take place.   

Please remember to pray for those taking care of Morgan, too!  They are wonderful, gifted and nurturing people who love our daughter and want to see her get well.  These people also take great care of Seth and me, too. 

As always, thank you for your love, prayers and support! 

Love,
Elizabeth and Seth McCoin

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