Wednesday, February 29, 2012

Little Princess

February 29, 2012  10:00pm

Our daughter is now being referred to as the Little Princess!  Morgan has had a great day.  Again, there is not much to report, medically.  The one bit of news is that our Princess will begin to feed by bottle tomorrow. They are going to start her off slowly with a half of an ounce once a day. It is obvious, by Morgan's various cues, that she is hungry and likes to eat.  She loves her mouth care and the flavor of her oral medicines.  We are hopeful that the time and growth, since her last bottle in early January, will aid in her ability to take the the bottle.   Please pray for her feedings, swallowing, and sucking as she begins this process, again.  This is a big step in her journey to come home.

Thanks for all the prayers for her lungs and their healing, as well.  We know the Lord above hears our requests.  He is in the miracle business!

Love,
Elizabeth and Seth McCoin

Tuesday, February 28, 2012

Relaxed Day

February 28, 2012 8:30pm

I am pleased to report Morgan's day has been very quiet and uneventful.  Medically, she has not changed.  She has spent her day playing on mat, watching her mobile, strolling and napping.   She has been awake and interactive with us.  Morgan has had a great day! 

Please continue to pray for Morgan's lung development, progress forward and healing. Also, please pray for her swallowing and eating, as they prepare her to begin that process again.  (We do not have a specific time frame, but we are hopeful it will be soon.)  Pray against infections and for her caregivers. 

Seth and I are thankful for your prayers for our daughter.  We know the Lord hears our prayers and is healing Morgan! 

Love,
Elizabeth and Seth McCoin

Monday, February 27, 2012

Work Out Day

Monday, February 27, 2012   9:30pm
Our little miracle baby has had a very busy day!   She is such a happy and relaxed baby most of the time.  She also had a several work outs today!

It is important walk the fine line that prompts Morgan to move forward, yet does not cause her to go backwards.  The doctor is proud of Morgan's progress in the last few days and is making adjustments to encourage to keep going.  We know these adjustments will benefit Morgan.

She continues to well on her oxygen dependency. She is holding her course. Ultimately, she needs to wean down further. Please pray for strength in those little lungs and for their life. I love to picture Jesus the breathing the breath of life into them! 

Morgan has been working hard today!  She has been visited by the physical therapist, who gave her a "massage".  The speech therapist came to work on her eating and sucking.  She also relaxed to the music therapist who sang her to sleep.  Each of the therapists has a gift and Morgan loves each one for a different reason.  Morgan's muscles motored, her taste buds blossomed, and her ears were elated.

Seth and I are pleased with Morgan's progress since her stint on the C-PAP last Wednesday.  We are prayerful that she will continue to get better. We are anxious to get her home, but we are patient .... well, sort of! 

Thank you for all your support!  Please continue to pray for her lungs, against infections, and for those taking care of her. 

As we left tonight, Morgan was sitting up in her chair watching the mobile.  As we kissed her good night and said our good-byes, Morgan's arms waved up and down as if to tell us bye-bye and good night!  That little pistol always has something up her sleeves, and it is not just her arms!

Love,
Elizabeth and Seth McCoin

Sunday, February 26, 2012

Strolling Outside

Sunday, February 26, 2012  8:27 PM

Morgan has put together a string of great days.  She is getting stronger each day and she is doing so well with her breathing.  We are so thankful for her progress, because she is so interactive with us when she feels well. Currently, there isn't anything complicating Morgan's battle, which is great, great news. 

Today was a gorgeous day in Birmingham.  It was so pretty, in fact, we were able to take Morgan OUTSIDE for a stroll.  It was her first time outside the walls of the hospital (other than her transfer to UAB back in October).  We bundled her up and headed down to the fountain outside the lobby.  She slept through most of the trip, but she reacted to the sunlight when the sun's rays peaked around the canopy of her stroller.  Of course, it was more fun for us than her, but the three of us had a great time together. 


Please pray that Morgan's great progress will continue.  We are so anxious to bring her home.  Please also continue to pray for Morgan's wonderful team at UAB.  Thank you all for keeping up with our daughter and thank you for your prayers.

Seth and Elizabeth McCoin

Thursday, February 23, 2012

Progress

Thursday, February 23, 2012  9:15pm

What a difference a day makes!  Morgan was able to get off the C-PAP today.  The Lord is faithful and answered our prayers!  We are so thankful!

Morgan's was able to rest well last night and, as a result, her levels decreased.  The doctor was comfortable taking her off the machine.   He worked a deal with Morgan... if she starts to struggle to breathe again, he will put her back on the C-PAP for a short stint to help her recover.  Morgan's current nasal cannula settings are higher than they have been in the past, but the doctor is okay with that.  She is much more relaxed, happy and comfortable on it.  He is willing to let her work on her own.  Being back on the nasal cannula also forces to use her lungs and not become dependant on the C-PAP. 

We are still praying for the complete healing of her lungs.  The immediate goal is getting rid of the infection and the long term goal is total healing.  We pray that will be no future infections either.

Her diaper rash continues to heal.  It is not completely gone, but looks much, much better. 

She continues to have bouts with a fever.  They attribute the cause to two areas: the infection and her chronic condition.  They are able to treat it with Tylenol or ibuprofen. 

Morgan was alert today.  She sat up in a new chair the nurse brought to her and she played on her play mat.  She sat in my lap for about two hours tonight, as well.  She was wide awake, alert and in tune with her surroundings.  She is content.

We are thankful for your prayers and the Lord for His healing.  Please continue to pray for her recovery and those charged with her care. 

Love,
Elizabeth and Seth McCoin

Wednesday, February 22, 2012

Calling All Prayer Warriors

Wednesday, February 22, 2012 1:30pm

Calling all prayer warriors.... Please pray for Morgan's lungs and their healing.
Our little Morgan has had to return to the C-PAP this morning. This step backward was caused by a combination of the urinary track infection and the extra fluid that is within her little body. This combination caused her to breathe harder and need additional assistance. Over the last few days, it has been obvious that Morgan has been working harder to breathe. Early this morning the nasal cannula could not provide enough additional help, so they had to put her on the C-PAP. After being on the C-PAP for a little bit, her little body relaxed and it is not fighting to breathe anymore. Her various levels began to improve, as well. We do not know how long she will be on the C-PAP. We are prayerful it will not be long. The doctor feels she has gained lung strength and momentum in the recent weeks, so he feels she will handle this well. Seth and I are concerned and just want her to move forward, not backward.
Please pray against infections. This is exactly why it is so critical for Morgan not get any infections and inflammations. When we, with healthy and strong lungs, get inflammations/infections within our body, our lungs can handle the extra labor needed to breathe. Since Morgan has a chronic lung issue, her lungs do not always have the strength to fight off the inflammation.
I wanted to briefly update everyone. Thanks for your prayers and support!

Love,
Elizabeth and Seth McCoin

Monday, February 20, 2012

Not Much Action But Getting Bigger

Monday, February 20, 2012  10:30 PM

There is not too much to report on Morgan today.  She slept soundly most of the day and we always love her to sleep.  Not because we want a quiet baby upon her venture home, but because her precious little lungs grow when she sleeps.  Tonight when we were visiting with her, she was much less "fussy" than she has been.  It is always so much fun to see her with her eyes wide open and feeling calm.  She is simply an angel and such a joy to watch.  

We did learn that Morgan's urinalysis came back positive.  Of course, the medical world's positive relates to our world as negative.  As we have suspected, Morgan has an infection.  At this point, we are not terribly worried and believe the circumstance to be highly treatable with antibiotics.  Sweet (and sneaky) Morgan should be up to her old tricks again very soon.  We pray that our inclination(s) are accurate and that she will feel much better as fast as possible.

"...And in this corner..." our chunky monkey is weighing in at a whopping 8 lbs, 8 oz!  Her weight is currently a bit askew, due to her retention of fluid, but coming from 1 lb, 5 oz, that's pretty good.  While the fluid is providing some smoking mirrors, we are still excited about her overall ability to gain weight.  

Please continue to pray for Morgan's care team.  They are constantly providing us with confidence and peace.  

Seth and Elizabeth McCoin